Twilight Chinchillas
Zookeeper extraordinaire
Getting ready for my upcoming BMT has been a rather frustrating experience to say the least. Daily doctors appointments, injections in my stomach 1-2x a day, hard dose chemo in the hospital, and 2 doctors that don't know what they are doing yet! I'm right now at the mercy of their schedules. One is on vacation, another is heading to vacation, so of right now, they have me set at August 22 for admission for 1 week of heavy dose BEAM chemo, them give me my cells, and wait.....and wait...... We are looking at probably 4 weeks in the hospital if everything goes well. IF their schedules don't work, then they are talking about October! Ughhh. I miss normalcy!
Right now the maintenance part of having a hickman is grueling. I get it flushed, and dressings done twice a week, and throw up every time! After awhile the body knows what is being put into it, and just looking at the syringe, or tasting it as they push it into the lines, produced nasty results!
My last chemo was 3 days in the hospital. You GET no sleep. So now, the past week and a half I have been going to bed at 4 am. Not good when you have kids that want to get up at 6 am. Yes, my dear son Ramos!
The side affects are doable. They almost gave me a blood transfusion yesterday, because of my lab work, but I felt good, so ran for the hills, and said NO THANK YOU!
I guess the one good thing is I don't have to style my hair anymore. I cut it all off, and finally after a year, I am no longer on coumadin, so can eat all the green I want!
Well that is about it. Miss making toys, and all but little time left in the day to do much. I do have some fleece houses I might add later that Stephanie was sooo kind to make for me with all my fleece. Trying now to raise money to get my sister in law out here to help with the kids, so my husband can go back to work. Sure makes me appreciate the little things. Yes, despite it all I remind myself it could be worse! Here's to kicking it's butt again, and hopefully permanently this time!
Right now the maintenance part of having a hickman is grueling. I get it flushed, and dressings done twice a week, and throw up every time! After awhile the body knows what is being put into it, and just looking at the syringe, or tasting it as they push it into the lines, produced nasty results!
My last chemo was 3 days in the hospital. You GET no sleep. So now, the past week and a half I have been going to bed at 4 am. Not good when you have kids that want to get up at 6 am. Yes, my dear son Ramos!
The side affects are doable. They almost gave me a blood transfusion yesterday, because of my lab work, but I felt good, so ran for the hills, and said NO THANK YOU!
I guess the one good thing is I don't have to style my hair anymore. I cut it all off, and finally after a year, I am no longer on coumadin, so can eat all the green I want!
Well that is about it. Miss making toys, and all but little time left in the day to do much. I do have some fleece houses I might add later that Stephanie was sooo kind to make for me with all my fleece. Trying now to raise money to get my sister in law out here to help with the kids, so my husband can go back to work. Sure makes me appreciate the little things. Yes, despite it all I remind myself it could be worse! Here's to kicking it's butt again, and hopefully permanently this time!
